We were told at our 12 weeks scan that our unborn baby may
have a condition called Gastroschisis. We were referred to Birmingham
Women's Hospital in the West Midlands where they confirmed Gastroschisis.
We then had regular 4 weekly growth scans (everything is picked
up through these scans which can add to the worry, but necessary),
at around 20 weeks there was a cist on our baby's brain, because
of the Gastroschisis they offered us an amniocentesis which
we had and the results were clear.
A cist can appear on any unborn baby so the doctors assured
us there was nothing to worry about and it did disappear nearer
her due date. My care was transferred to Birmingham at 36 weeks.
My scans were then every two weeks, we also made an appointment to see the delivery
suite, the ward where our baby would be transferred to and the
special care unit. I was told that I could deliver naturally
even though I had my first child by C section, however I would not be left longer than
38 weeks and our baby would be delivered early.
At 38 weeks pregnant at my routine appointment a date was
arranged for me to be induced. Due to some complications I wasn't
induced that morning but went into labour naturally as I was
waiting in the hospital. Our daughter Amy was born only 4 hours
later (March 8th 2005 @ 9.59pm). Everything that the foetal
medicine department had explained that would happen during the
delivery was correct and made the whole experience less worrying.
Amy was delivered naturally by a midwife, a doctor and his assistant
were in the delivery room along with another midwife.
The paediatricians didn't come in until she was born and we
got to see her before she was taken to Special Care Unit in
the hospital. Amy was transferred to Birmingham Children's Hospital
3 hours later, her Dad followed her as I went to a ward for
the night. I was discharged the next morning and went to see
our daughter. Her bowels were in a bag and a little had already
been squeezed back into her belly during the night, she was
an incubator and was being fed by Parental Nutrition (PN) ,unfortunately
they couldn't get the line through her arm so
they had to go trough her head (sounds awful but be assured
she didn't feel a thing).
After 5 days all her bowels were in her belly, now she had
to tolerate the milk and have some bowel movement. It's probably
the only time you'll be wishing for a dirty nappy and even nanny's
and grandad's will be phoning up asking "has she pooed"!
After a few day's her bowels opened. Sometimes there were times
if felt like we took two steps forward and one step back and
the pressure did get to us but we were lucky.
Amy gradually fed on more milk and after three weeks her PN
line was removed, this was the first time I could hold our baby with
no wires!! Amy was home after 3 weeks and discharged after 4. We we're
really lucky and sometimes if babies either don't tolerate milk or
if there's other complications with the bowels the time in hospital can be longer.
Every child with this condition is very different. Amy is now 10 months
old, she does have a hernia and will have another operation
when she's about 2, but she's healthy and happy. I went on this
web site when I found out about Amy's condition, it helped me
a lot and prepared me. I realised how lucky we are with Amy
and for all the staff during our pregnancy. The only advice
I have is speak to other mothers on the wards especially mothers of babies who have had the same condition, it really
and big sister Ashleigh