On March 17th 2009 I had my twelve week scan of my
first baby, it was then that we were told that she had
Gastroschisis. Our local hospital arranged for us to
go straight over to a more equipped hospital to get
more information, however when we got there we just
felt like they were judging our reactions to the news
and they only told us what we had already been told.
We were also told not to look it up on the internet
as we would only find worse case scenarios, the only
thing they gave us was an information sheet which was
one A4 side! All I can say is thank God we did eventually
look it up.
QEQM in Margate, Kent was to be our closest point of
call, and where we would go every four weeks for growth
scans. At our 1st appointment with a consultant there,
we was told that we would have to give birth in Lewisham
University Hospital, as that was the nearest hospital
that specialised in bowel problems and it was 80 miles
away from our home. Well if it wasn't for us going to
Lewisham we would have spent the whole of my pregnancy
completely beside ourselves with worry. This would have
been because at our appointment at QEQM the consultant
told us that gastro babies only have a 50/50 chance
of surviving. They frightened the life out of me and
my partner telling us that there was such a big chance
our baby could die after she was born. This information
however and most of the other information we were given
was incorrect, as we later found out at Lewisham.
The first time we went to Lewisham wasn't until I was
19 weeks gone so we spent a lot of time not knowing
anything as we only had what QEQM had told us to go
by. At Lewisham they put our minds at ease, telling
us they dealt with cases every week and that there is
such a small chance that our baby wouldn't make it and
that she shouldn't have any lasting problems and they
would even make her a fake belly button. We was shown
photos and told that we should look it up on the Internet.
We were due to be induced on the 21/09/2009 only a
week prior to my due date, however at a scan at QEQM
at 35 weeks they told us that the bowl had dilated and
part of the stomach was herniating. We went straight
to Lewisham the next day to get a second opinion and
they reassured us that it was pretty normal and it was
nothing to worry about. We discussed with Lewisham that
our date to be induced was too far away and too risky
as we lived 80 miles away they agreed and bought it
forward to 37 weeks.
So on the 8 the Sept 2009, my labour began. We knew
we were having a little girl and her room at home and
all her pretty clothes were all waiting for us but we
expected this to be the slowest moving time of our lives.
Through my labour not only did our baby have a Gastroschisis
but she had a high heart rate and when my waters were
broken she was lying in meconium and I was not dilating.
After us telling the doctors we thought it was going
on too long and there was a need for a c-section they
agreed and on 09/09/09 Elouise Poppy was bought into
Elouise's bowel was put straight into a silo bag in
theatre. My partner was then allowed to see her and
stay with her whilst they got her settled in NICU. She
weighed 5lbs 7oz and didn't need any oxygen or sedation.
I didn't get to see her until 8hrs after she was born
but it was worth the wait she was absolutely gorgeous
and to us so perfect. We were prepared as we could have
been for what the bowel would look like and it wasn't
shocking at all.
Her Gastroschisis was large and very swollen, we honestly
had no idea how it was going to fit inside her, but
after just a few days you could already see that it
was less swollen and the surgeons come to push it down
every morning. We didn't like to watch the bowel being
pushed down as it looked very painful but seconds after
Elouise had forgotten and was not in any other pain.
The first week went past very quickly and seven days
after she was born she was to have her closure operation.