GEEPS is run by the families and friends of affected
children and is a non profit making network. Money raised is used
to fund this website as well as producing occasional newsletters
and poster campaigns to raise awareness of GEEPS and the conditions
The aim of GEEPS is to support families through
the shock of diagnosis and beyond in the hope that some of the stress
can be relieved by sharing thoughts and fears with other parents
- parents who have been in the same or similar situation.
Support is done via regular
updates to the information on this site, the
experiences pages and by using the discussion
board. To get the most from this site, we suggest reading all
the available information, visiting the links
section and reading the experiences pages. If you would like
to discuss aspects of your particular circumstances, then please
register on the discussion board and post details of your circumstances/query.
The discussion board is well read by other families
who have been or are going through the same experiences (and are
by far the best placed people to give guidance), as well as medical
professionals all over the world. The discussion board is also monitored
by the administrators of this site who will also do their best to
answer any queries. If you still feel you have a query or that something
has not been covered please email us at firstname.lastname@example.org
and we will try to answer or find an answer to your question.
You are welcome to print as many pages from this
site as you may need.